‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality [2018]

Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples’ experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals’ experiences of treatment and

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‘Something needs to change’: Mental health experiences of young autistic adults in England – 2018

There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly

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A systematic PRISMA review of individuals with autism spectrum disorder in secure psychiatric care: prevalence, treatment, risk assessment and other clinical considerations – 2018

Purpose Patients with autism spectrum disorder (ASD) present with specific assessment, specific difficulties, needs and therapeutic issues and therefore are a challenging group for forensic services. Given the challenge that individuals with ASD present to forensic services, the suggested increase in the number of this group within this setting and

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A systematic review of screening tools in non-young children and adults for autism spectrum disorder [2018]

Background Existing reviews of screening tools for Autism Spectrum Disorder (ASD) focus on young children, and not all screening tools have been examined against validated diagnostic procedures. Aims To examine the validity of screening tools for ASD in non-young children and adults to provide clinical recommendations about the use of

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Aging well on the autism spectrum: the perspectives of autistic adults and carers

“Aging well” is an increasingly popular concept in gerontology. Adults with disabilities such as autism spectrum disorder represent a demographically substantial population, yet remain excluded from existing conceptualizations of aging well. This qualitative study aimed to explore what it means for autistic adults to “age well” from the perspectives of

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Audit of outcomes following a community‐based early intensive behaviour intervention program for children with autism in Australia [2018]

Objective Research studies have shown that early intensive behaviour intervention is an effective treatment for children with autism spectrum disorder (ASD). However a research‐to‐practice gap exists, whereby the interventions effective in university‐based studies are not implemented effectively in community settings. The current study is an audit of outcomes achieved by

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Autistic spectrum disorder and offending behaviour – a brief review of the literature [2018]

Purpose The purpose of this paper to synthesise much of the existing research on autistic spectrum disorder (ASD) and offending behaviour. Design/methodology/approach It considers three key areas, namely, first, a discussion about the nature of ASD and how it might be related to offending behaviour; second, a brief commentary about

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Autistic spectrum disorder and offending behaviour – a brief review of the literature [2018]

Purpose The purpose of this paper to synthesise much of the existing research on autistic spectrum disorder (ASD) and offending behaviour. Design/methodology/approach It considers three key areas, namely, first, a discussion about the nature of ASD and how it might be related to offending behaviour; second, a brief commentary about

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Autistic spectrum disorder without intellectual impairment in adult mental health services – fostering new perspectives and enhancing existing services [2018]

Autistic spectrum disorder (ASD) is a neuro-developmental disability with multi-systemic impacts. Individuals with ASD without intellectual impairment (DSM-V) or Aspergers (DSM-IV) are often particularly vulnerable to mental health problems such as anxiety disorders including social phobia and generalised anxiety disorder, depressive disorders and psychosis. Adults with ASD without intellectual impairment

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Challenging behaviours at early adulthood in autism spectrum disorders: topography, risk factors and evolution – 2018

Background Challenging behaviours are highly prevalent in children and adolescents with autism spectrum disorders (ASD), but little is known about the prevalence and course of these behaviours during adulthood. The aims of this study were to describe the topography of challenging behaviours in a cohort of 106 young adults with

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Challenging behaviours at early adulthood in autism spectrum disorders: topography, risk factors and evolution – 2018

Background Challenging behaviours are highly prevalent in children and adolescents with autism spectrum disorders (ASD), but little is known about the prevalence and course of these behaviours during adulthood. The aims of this study were to describe the topography of challenging behaviours in a cohort of 106 young adults with

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Diagnosing Autism in Adults with Intellectual Disability: Validation of the DiBAS-R in an Independent Sample – 2017

The study assessed the diagnostic validity of the diagnostic behavioral assessment for autism spectrum disorders-revised (DiBAS-R; 19-item screening scale based on ratings by caregivers) in a clinical sample of 381 adults with ID. Analysis revealed a sensitivity of 0.82 and a specificity of 0.67 in the overall sample (70.3% agreement).

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Diagnosis and treatment of ASD in women in secure and forensic hospitals [2018]

Purpose The purpose of this paper is to explore the experience and possibilities for misdiagnosis of women with ASD in secure and forensic hospitals, via the medium of a lived experience case study. To consider the clinical value of the patient perspective of and insight into their disorder. The case

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Early Identification of ASD Through Telemedicine: Potential Value for Underserved Populations [2018]

Increasing access to diagnostic services is crucial for identifying ASD in young children. We therefore evaluated a telemedicine assessment procedure. First, we compared telediagnostic accuracy to blinded gold-standard evaluations (n = 20). ASD cases identified via telemedicine were confirmed by in-person evaluation. However, 20% of children diagnosed with ASD in-person were not

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Emergency service experiences of adults with autism spectrum disorder without intellectual disability – 2018

This study aimed to describe patterns of emergency department use and police interactions, as well as satisfaction with emergency services of 40 adults with autism spectrum disorder without intellectual disability over 12–18 months. Approximately 42.5% of the sample reported visiting the emergency department and 32.5% reported interactions with police during the

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Evaluation of a Program Model for Minimizing Restraint and Seclusion [2018]

This study conducted a longitudinal evaluation of an organizational change effort to minimize restraint and seclusion within a behavioral healthcare facility that serves at-risk and high-risk clients with intellectual, developmental, and psychiatric disabilities, using a context, input, process, and product model. The change effort was developed and implemented at an

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Experiences of Autism Acceptance and Mental Health in Autistic Adults – 2017

Mental health difficulties are highly prevalent in individuals on the autism spectrum. The current study examined how experiences and perceptions of autism acceptance could impact on the mental health of autistic adults. 111 adults on the autism spectrum completed an online survey examining their experiences of autism acceptance, along with

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Exploring and building autism service capacity in rural and remote regions: Participatory action research in rural Alberta and British Columbia, Canada [2018]

Based in participatory action research, this project had the aim of building capacity in treatment and support for individuals and families impacted by autism spectrum disorder in remote and rural communities of Canada. Communities were selected based on their rurality and willingness to engage in change efforts for enhanced service

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Impact of Autism Navigator on Access to Services [2016]

Objective: To determine whether access to an Autism Patient Navigator (APN) for children diagnosed with autism spectrum disorder (ASD) at <48 months of age would be useful and lead to more appointments with needed services. Method: Participants included parents of 39 children diagnosed with ASD in a multidisciplinary clinic. After

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Impact of challenging behaviour on siblings of people with Autism [2018]

Purpose Despite being largely supportive of their sibling with an autism spectrum disorder (ASD), some siblings without ASD also feel the effects of the disorder particularly in relation to challenging behaviour and lack of empathy. The purpose of this paper is to explore the experiences adults who have a sibling

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Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders – 2017

Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their

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Predictors of emergency department use by adolescents and adults with autism spectrum disorder: a prospective cohort study [2017]

Objectives To determine predictors of emergency department (ED) visits in a cohort of adolescents and adults with autism spectrum disorder (ASD). Design Prospective cohort study. Setting Community-based study from Ontario, Canada. Participants Parents reported on their adult sons and daughters with ASD living in the community (n=284). Main outcome measures

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Predictors of quality of life for autistic adults [2018]

Research with adults on the autism spectrum is as yet limited in scope and quality. The present study describes quality of life (QoL) of a large sample of autistic adults in the UK and investigates characteristics that may be predictive of QoL. A total of 370 autistic adults from the

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Reducing Restraint in Individuals with Intellectual Disabilities and Autism Spectrum Disorders: a Systematic Review Group Interventions [2018]

Safe restraint reduction is important to remove unnecessary stigmatizing and harmful behavior management practices in individuals with developmental disabilities. Despite calls to reduce such practices, they remain common. The literature was searched to identify empirical papers using interventions of any kind to reduce restraint and related restrictive behavior management practices

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Review: Yoga and mindfulness for youth with autism spectrum disorder: review of the current evidence [2018]

Background Yoga and mindfulness‐based programs are becoming increasingly popular as a supplemental intervention for children and adolescents with autism spectrum disorders (ASD). Increasing numbers of children, parents, and schools are participating in programs around the country with an enthusiasm that far exceeds the research support for their efficacy. Therapies that

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