A person‐centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia – A participatory action study [2020]

Background
Numbers of people with an intellectual disability and dementia present a global health and social challenge with associated need to reduce stress or agitation and improve quality of life in affected individuals. This study aimed to identify effectiveness of psychosocial interventions in social care settings and, uniquely, explore use of photovoice methodology to develop dialogue about dementia.

Methods
This mixed‐method participatory action study used individualised goal‐setting theory with 16 participants with intellectual disability and dementia, and 22 social care staff across 11 sites. Five co‐researchers with intellectual disability were part of an inclusive research team collecting data using existing and bespoke tools including photovoice. Analysis used descriptive and inferential statistics and framework analysis.

Results
Seventy four percentage of individual goals met or exceeded expectations with reduction in some “as required” medication. Qualitative findings include themes of enabling care and interventions as tools for practice. Photovoice provided insight into previously unreported fears about dementia.

Conclusions
Individualized psychosocial interventions have potential to reduce distress or agitation.

Karen Watchman, Kate Mattheys, Michael McKernon, Heather Strachan, Federico Andreis, Jan Murdoch
JARID: Journal of Applied Research in Intellectual Disabilities, 18 August 2020
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