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Personal characteristics and outcomes of individuals with developmental disabilities who need support for self‐injurious behaviour [2018]

Background
For people with intellectual and developmental disabilities, self‐injurious behaviour (SIB) can have serious negative effects on both health and quality of life. This descriptive analysis will provide information on the characteristics and outcomes of a subsample of individuals who are identified as needing some or extensive support for SIB in the National Core Indicators Adult Consumer Survey sample.

Methods
The data for this analysis come from states that participated in the 2015–2016 data collection cycle of National Core Indicators Adult Consumer Survey which is a face‐to‐face survey of adults receiving services through state developmental disability agencies.

Results
The characteristics and outcomes of individuals who need at least some support for SIB differ from those of individuals with intellectual and developmental disabilities who do not need support for SIB. Individuals with SIB support needs, for example, tend to live in more structured settings, have fewer relationships, less inclusion in their communities and poorer employment outcomes.

Conclusions
The exploratory descriptive analysis concludes with suggested recommendations for more standardised definitions of SIB in public systems, enhanced behaviour plan protocols and the need for additional research.

V. Bradley D. Hiersteiner D. Rotholz J. Maloney H. Li A. Bonardi J. Bershadsky

Journal of Intellectual Disability Research, 18 July 2018

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